Parkinson’s Support in England: A Guide to Resources for Families and Caregivers

Parkinson’s Disease is a chronic and progressive neurological condition that affects movement and can have a significant impact on a person’s quality of life. It can also be challenging for family members and caregivers to cope with the emotional and physical demands of caring for a loved one with Parkinson’s.

For our final blog of Parkinson’s Awareness Month here are some key resources to help you support your loved one living with Parkinson’s Disease.

The Parkinson’s UK Helpline

The Parkinson’s UK Helpline is a free service that provides information and support to people with Parkinson’s, their families, and caregivers. The helpline is staffed by trained advisers who can offer advice on a range of topics, including medication, treatments, and support services. They can also provide emotional support and signpost to local support groups.

Website: https://www.parkinsons.org.uk/
Phone: 0808 800 0303

Local Support Groups

Local support groups can be an excellent resource for families affected by Parkinson’s Disease. They provide a safe and supportive environment where people can share their experiences, receive practical advice and emotional support. Parkinson’s UK has a searchable directory of local groups on their website.

Website: https://www.parkinsons.org.uk/information-and-support/local-support-groups

Parkinson’s Nurses

Parkinson’s Nurses are specialist nurses who provide expert care and support to people with Parkinson’s Disease, their families, and caregivers. They can offer advice on medication management, symptom management, and provide emotional support. Parkinson’s Nurses are available in most areas of England, and you can ask your GP or specialist to refer you to one.

Website: https://www.parkinsons.org.uk/information-and-support/parkinsons-nurses

The National Tremor Foundation

The National Tremor Foundation is a charity that provides information and support to people with all forms of tremor, including those with Parkinson’s Disease. They offer a range of services, including an information helpline, online support groups, and a peer support network.

Website: https://tremor.org.uk/
Phone: 01942 914 000

Carers UK

Carers UK is a national charity that provides information and support to unpaid carers. They offer a range of services, including an information helpline, online support groups, and a peer support network. They also provide practical advice on issues such as financial support, benefits, and legal rights.

Website: https://www.carersuk.org/
Phone: 0808 808 7777

Caring for a loved one with Parkinson’s Disease can be challenging, but it’s important to remember that you’re not alone. There are many resources available to support families affected by Parkinson’s Disease in England, including the Parkinson’s UK Helpline, local support groups, Parkinson’s Nurses, the National Tremor Foundation, and Carers UK. By reaching out for support, you can access the information and advice you need to provide the best possible care for your loved one.